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Caring for A Child With Life-Limiting Illness with Blyth Lord

Posted by Karen M. Wyatt on February 3, 2015 at 5:50 PM



Thursday February 26, 2015
10 am Pacific/1 pm Eastern




Join Dr. Karen Wyatt and her guest Blyth Lord, founder of the Courageous Parents Network and contributor to the new Pediatric Starter Kit from The Conversation Project. They will be discussing Blyth's experience losing a young child to Tay-Sachs disease and how she has been inspired to reach out to other parents who are caring for children with life-limiting illnesses. Don't miss this heartfelt and important conversation!


In this interview you will learn:

  • What factors are most helpful to families coping with the devastating loss of a child.
  • The benefits of Pediatric Palliative Care from a parent's perspective.
  • How the Courageous Parents Network is offering support to parents caring for terminally ill children.
  • How the Pediatric Starter Kit from The Conversation Project is helping parents have important conversations with their ill children.


Blyth Lord is the founder and Executive Director of Courageous Parents Network, a nonprofit focused on improving the experience of parents caring for children with life-limiting illness through education, advocacy and parent-to-parent support. Blyth is also the Executive Director of the Cameron and Hayden Lord Foundation, a small family grant-making foundation whose mission is to advance pediatric palliative care in the United States, as well as fund research of therapies for lysosomal storage diseases. Blyth's daughter, Cameron, and nephew, Hayden, died of Tay-Sachs disease in 2001. In the years following, Blyth has promoted the needs of families caring for children with serious illness and how providers can best meet these needs. Blyth is also co-chair of the Parent Advisory Group for the AAP’s Section on Hospice and Palliative Medicine.


Blyth sits on the board of National Tay-Sachs and Allied Disease and on the board of The Children’s Room, a bereavement support program for young families who have lost parents/siblings/children.


Websites: http://courageousparentsnetwork.org

                http://theconversationproject.org

Categories: Palliative Care, Grief and Bereavement, Advance Care Planning